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Grandmother Helps Raise $100,000 for Duchenne Muscular Dystrophy Research

CureDuchenne muscular dystrophy

When Kate Miner Moebel’s grandson, Shepherd, was diagnosed with Duchenne muscular dystrophy in 2019, she felt a call to help. Kate, who lives in Dallas and serves as Champions in Dallas chair, helped coordinate efforts with Champions and CureDuchenne this year, according to a release from CureDuchenne.

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“From the moment Shepherd was diagnosed, I knew I had to act. My heart was filled with a desire to raise awareness and funding, and tonight has reaffirmed that mission. Seeing this incredible community come together to support CureDuchenne gives me hope for Shepherd’s future and for all the boys affected by this disease,” the grandmother said.

The Event Raised Important Funds CureDuchenne

Per the release, Dallas’ most prominent business leaders, philanthropists, and influencers gathered for a night of culinary adventure in support of CureDuchenne. CureDuchenne’s founder and CEO, Debra Miller, expressed gratitude to Champions Dallas and all those who helped make the evening a resounding success.

“This event is a testament to the power of community. Every dollar raised brings us closer to new treatments and, ultimately, a cure for Duchenne. We are so thankful to everyone who contributed to making this night unforgettable,” Debra said.

She added, “Champions in Dallas is about more than just an event. It’s about giving families hope and funding research that can change the course of Duchenne. Together, we are getting closer to a cure.”

According to CureDuchenne.org, Duchenne muscular dystrophy affects 15,000 individuals in the United States, primarily males. More than 300,000 people live with Duchenne worldwide, and there is no cure.

“CureDuchenne has leveraged more than $3 billion in follow-on investment from venture capital, biotech, and pharmaceutical companies to fund research. To date, 18 CureDuchenne research projects have advanced into human clinical trials. That’s a unique accomplishment. And we contributed funding to Sarepta Therapeutics, the first company to have an FDA-approved drug for Duchenne,” the website explains.

This story’s featured image is by Chinnapong via Shutterstock.

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